tag:blogger.com,1999:blog-4875490532388341413.post5333440493680954174..comments2024-02-13T17:17:06.829-08:00Comments on Journey with Gastroparesis: Troubles Arise, Goodbye J-TubeStephaniehttp://www.blogger.com/profile/10376604610344801300noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-4875490532388341413.post-6051182076377873232013-10-21T12:44:42.353-07:002013-10-21T12:44:42.353-07:00Joyce, I'm sorry to hear about your suffering....Joyce, I'm sorry to hear about your suffering. These tubes can really be a pain for some despite the fact that they are there to help us survive. I no longer have mine as it caused too much trouble and ended up on TPN. This is something you really need to consult with your doctor about and what the best next step for you is. I can say that aloe vera gel helped my skin around the tube when it was leaking and causing skin irritation. A dear friend of mine had all the same issues as you including the aspiration and is much better now after doing some myofascial release treatment, something I am currently doing as well. My latest blog post explains some of this and will have more to report in a few weeks. If you don't have a doctor who understands go and get a 2nd even 3rd opinion with specialists if possible. Wishing you well and don't give up hope, things can get better. Stephaniehttps://www.blogger.com/profile/10376604610344801300noreply@blogger.comtag:blogger.com,1999:blog-4875490532388341413.post-75632600266772654502013-10-17T13:10:58.134-07:002013-10-17T13:10:58.134-07:00I had a j tube put in about a three mth's ago,...I had a j tube put in about a three mth's ago, and I've been having problems from day 1, the first couple days pain, nausia, bloating. Third day, trying of formula, formula made me even more nausiated along with vomitting up this yellowish liquid. Dr.s said it would take time for my body to get used to, its a slow process. Almost mth later same problem, lost 18 pds. Finally I ask to change the formula. Body sorta of took to fomula but now I have dirreah, heart burn, nausia, stomach rumblings, constantly spitting up thick clots of cold and stomach pain and if that's not enough, I have to constantly stay hooked up to feeder along with worrying about the tube falling out if 1 stitch fall out I was diagnosist with asperation. Tried gtube once it kept falling out, they kept stabbing it back in, finally I told them to take it out. And I went for a year eating normal.finally got asperation in lungs causing pneaumonia in lungs again. So they recommended jtube. Now I'm restricted to my home and sick every day. And to top it off, when I requested gtube out they let me go suffering with acid eating my flesh from gtube for about a ur, until I agreed to jtube. Now why didn't they stop the gtube acid from burning my flesh like that. And now I'm sick everyday. Need replyjoycenoreply@blogger.comtag:blogger.com,1999:blog-4875490532388341413.post-26941204716070934972012-12-08T16:04:12.649-08:002012-12-08T16:04:12.649-08:00Stephanie I am praying that you recover quickly..Y...Stephanie I am praying that you recover quickly..YEs one thing I have learned from my GP is be your own advocate!!!Cynhttps://www.blogger.com/profile/09639094512838182226noreply@blogger.com