Recently, someone whom I love and respect (and still do!), said to me (regarding TPN calories), "before you know it that weight gain will be from eating too many cookies and not an IV!" Really? Yes, I am incredibly thankful that I'm able to put on this weight with the help of TPN, but that does not mean that the gastroparesis or dysmotility just disappears. It means I will have more of a cushion and strength to deal with it. And what happens after that? The digestive issues are still there. Don't get me wrong, I always try to imagine a day where eating a "normal" meal, sipping wine, socializing, all happily return to what they used to be, pre-GP. And it seems easier to think this myself and feel good about it. But when others only see the outside and have no idea how it feels inside, or the fact that gaining weight doesn't make it all go away, can be a bit maddening at times.
Here is a wonderful book that explains this well and I recommend reading it, not only for yourself, but to help others understand what we are going through too.
I am so amazed at the wonderful support and encouragement that is happening in the gastroparesis community. Through each other and by doing our best to educate those who love us, we will continue to have the strength to make it through the day and never feel alone.
Can you relate to feeling invisible with gastroparesis or any other "invisible" illness?