After two months of patiently waiting I finally got in to see a specialist at UW Medical Center in Seattle. Though I have done extensive research myself on the limited treatments for gastroparesis I was really hoping they would have some ideas I hadn't yet heard of. The doctor was very patient and kind, taking the time to absorb all my questions and concerns. She then proceeded to go over her main concerns, being my weight, and treatment options. There are basically two ways to approach this:
#1. Medication - Suggested use of Erythromycin for three weeks. This is an antibiotic (a huge phobia of mine) that when taken in small doses short-term can have the side effect of accelerating gastric emptying. The idea here is that it would allow me to take in more food, thus put on weight.
#2. Feeding Tube - The tube, called a jejunostomy tube, is inserted through the skin on the abdomen into the small intestine and allows you to put nutrients directly into the small intestine, bypassing the stomach altogether. The plan with this would be to keep it in for 3 months taking in extra nutrients in addition to what I can eat. This option feels desperate and really scares me with the possible complications.
Desperate, I opted for #1 but unfortunately after 10 days I had to go off of it because the side effects, strange enough, are nausea and pain, which was too extreme in my case to deal with.
So, that brings us to option #2. I'm taking a week to meditate on this, do some research and consult with my local doctors for opinions. It's not a cheap procedure and supplements for 3 months add up quickly. On good days I feel like I can just push through this but on bad days it feels like the best option.
If anyone out there has had experience with this or knows someone who has I would appreciate some insight!
I should know more about my decision by next week, wish me luck.