Sunday, July 14, 2013
Goodbye J-Tube #2
The surgeon who placed the tube back in January completely disagrees with the decision to get rid of it. Yep, the tube that has not been used in 6 months, caused me to feel worse when I did use it, and not to mention the daily pain and bleeding I currently struggle with because of it. In fact, he was so confident that he proceeded to tell me that if I don't have it as a back up and my TPN fails "you will certainly die." Seriously? Is that the kind of support and compassion we should be getting from our doctors, the ones we are paying so much money to so that we CAN get help? "What is your plan B?" he continues. Hmmm, I can sure tell you it's not coming back to see you Dr. P! And it's certainly not a tube sticking out of me that does nothing for my well being but cause more trouble.
one day at a time, breathing my way through each moment with hope that I will get better. There is no cure so this is all we have, HOPE. I've personally met people who have recovered and they continue to be the light at the end of the tunnel.
Wish me luck on a quick recovery and will be back to write about what's next on this Journey!